Tuesday, May 31, 2016

Where is the light?

I'm having so many neurological problems along with my gastroparesis right now. I still have the tremor in my right hand along with body tremors which happen about three to four times a day now. I’m also having speech problems. I keep losing words right at the moment I try to say something. I look at something and I can't remember what it's called. I keep mispronouncing and misspelling words.

My handwriting has become horrible. I barely read what I've tried to write, and I'm having the worst time concentrating, trying to keep a thought in my head. Also, I'm finding that most food to tastes like garbage. I don't know if it's because my sense of smell is off or if it's because of the gastroparesis.

My mri was normal and my eeg was normal, so no seizures. I went back to my neurologist and he is sending me to a neurology movement disorder clinic, but they have a temporary freeze on new patient appointments.They will call me with an appointment as soon as they can. Meanwhile, I'm still having the migraines and the sleep apnea as well. I'm off work on disability until the end of June, but how am I supposed to get better when they can't figure out what this tremor stuff is.

Thank goodness for that dictating thing on my iPhone or I wouldn't be able to even write this!

Thursday, May 19, 2016

Trying to Stay Positive



I'm trying to hard to stay positive right now, but it's so hard. I've been off work on disability because of the gastroparesis pain and the tremors in my right hand. I can barely type. Also, I'm having full body tremor things. I'm waiting on my neurologist on my eeg test to see if they are actually seizures, but they are doing my head in with this disorientation after. Even trying to type this and spell is a huge chore. My migraines are just going nuts with all this!