Through Myspace, I found a great online resource called The Invisibile Disabilities Advocate. From their website:
Do You Live with Chronic Illness or Pain?
"Do your loved ones have a hard time understanding how your symptoms such as extreme fatigue, pain, dizziness and cognitive impairments can be debilitating?
The Invisible Disabilities Advocate strives to help friends and family better understand chronic illness and pain, as well as learn how to be a source of encouragement and support.
IDA offers articles, booklets, pamphlets, links, an online support group, a discount book store, t-shirts and more to help you and your loved ones forge the journey with limiting conditions."
And I just finished reading their booklet But You Look Good which I ordered online from them, and it was a very helpful, insightful and informative like the book "Beyond Casseroles" and the dvd "Life and Migraine."
"But You LOOK Good! is a 52 page booklet that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"
The problem I'm having though is getting the people in my life to read and watch these things with me, which I think would help them dealing with me and my chronic migraines, but everyone is very resistent. I tried to get a relative to watch "Life and Migraine" with me, to which she replied "Why on earth would you want to watch that? You are already living it."
And I tried to get a friend to read "But You Look Good" and she said "I already know how to deal with stuff like that. I don't need anyone telling me how to do things."