Thursday, November 10, 2016

just an update

Things have not gotten any better. Since the summer, I've been diagnosed with a cognitive disorder with short term memory loss and language problems. I've been terminated from my job and I'm on long term disability. I still have the tremor, which they are calling a benign tremor. Also, I'm still dealing with the migraines as well. It's really hard for me to read and write things. I can't draw anymore either. I can't watch movies cause I can't follow the plot. I don't feel like myself at all anymore.

Tuesday, July 19, 2016

trying to hang in there



So my cognitive decline continues. I saw a new neuro. He ordered a DAT scan and a neuropsych evaluation which is in September. I can barely read or write. My short term memory is horrible. I don't feel like myself.

Tuesday, June 28, 2016

Find Peace



I'm really having a super hard time writing stuff and my drawing is suffering as well, so I've been taking nature pics and adding quotes

Monday, June 20, 2016

Trying to find the positive



Just trying to get my words and thoughts together to post something is awful. Everything just keeps getting worse.

Tuesday, May 31, 2016

Where is the light?

I'm having so many neurological problems along with my gastroparesis right now. I still have the tremor in my right hand along with body tremors which happen about three to four times a day now. I’m also having speech problems. I keep losing words right at the moment I try to say something. I look at something and I can't remember what it's called. I keep mispronouncing and misspelling words.

My handwriting has become horrible. I barely read what I've tried to write, and I'm having the worst time concentrating, trying to keep a thought in my head. Also, I'm finding that most food to tastes like garbage. I don't know if it's because my sense of smell is off or if it's because of the gastroparesis.

My mri was normal and my eeg was normal, so no seizures. I went back to my neurologist and he is sending me to a neurology movement disorder clinic, but they have a temporary freeze on new patient appointments.They will call me with an appointment as soon as they can. Meanwhile, I'm still having the migraines and the sleep apnea as well. I'm off work on disability until the end of June, but how am I supposed to get better when they can't figure out what this tremor stuff is.

Thank goodness for that dictating thing on my iPhone or I wouldn't be able to even write this!