Friday, August 28, 2015

The End of August

This has been such a long month and so stressful. The results came back from the radioactive scrambled egg test and the solid food portion was abnormal. My doctor says he thinks I have gastroparesis, which means the stomach doesn't function normally. Basically it's paralysis of the muscles of the stomach. I heard this from his nurse over the phone with the results so there wasn't much information. I'm still waiting for the test in September to see if there is an obstruction causing this.

Meanwhile, my symptoms with the pain, cramping and not eating much are getting worse, but I can't take time off work to go see him again or I will lose my job. I really thought I was going to be terminated last week, but I got another stern warning. I don't think it's a question of "IF" I'm going to be a fired, but more of a question of "WHEN."

I'm starting to miss the days when I was just worried about my migraines. They are still going strong, especially now with my allergies. I haven't used my cpap machine in weeks cause of all the congestion. And my ADA claim was denied, but there wasn't enough evidence for an accommodation.

Wednesday, August 12, 2015

August Update

I'm still trying to hang in there, but I've been so depressed that I didn't want to post another "poor me" whine fest. I had the gastric emptying study where I had to eat radioactive eggs to see how the food progressed through my system. I'm still waiting for the results. And my next endoscopy isn't until the middle of September. All my symptoms are still the same with the pain and cramping in my abdomen and I'm continuing to lose weight.

Meanwhile, I'm on a final 30 day written warning at work and I'm pretty sure I will be terminated next week. I did exhaust my fmla time, so now I have to work even when I have a major migraine pain flair up. I've been trying to improve my performance at work, but I can't make enough of a difference because of all my health issues. Yesterday, I had an awful migraine, so I was making all sorts of mistakes. Talk about crash and burning!

Wednesday, July 15, 2015

Will it get any better?

I finally heard back from my new gastro doc. He said my blood work all came back negative, and he wants a few more tests done. I have a gastric emptying study scheduled for August, and he wants to do another endoscopy. The problem is that the first available appointment isn't until Sept 15th. So I have to wait two more months to try to get this resolved.

Because of this additional chronic illness, I've missed too much time at work and my employer has cancelled my FMLA, which means I can't take anymore time off work because of illness. They had to use my existing sick time to try to cover the extra days off, which wasn't enough, so I'm being written up for unexcused time. Also, I had been written up due to a performance issue (because of my health as well). I'm very close to losing my job.

Thursday, July 9, 2015

Waiting for news...

I saw the new gastro doc at the great big university hospital. He said he had to get all my records first and he wanted a bunch more blood work before he would let me know what they are going to do next. So I had everything faxed over there and more blood drawn. I'm still waiting for their phone call. I'm trying not to imagine what they are going to say. It's been officially three months since this whole thing started!

Thursday, June 25, 2015

Nothing is Getting Better

I don't think I've ever had such a blue period in my life with my health. My upper abdomen pain continues with all the symptoms of before with the loss of appetite, food tasting horrible, losing weight, stabbing and cramping pain, malaise, etc... I went to see my primary care doctor to catch her up with what's been going on and she wants me to go to The University of Michigan Hospital, so she did a referral for me. I'm seeing a gastro doctor next week as an urgent patient.

Meanwhile at work, things are going from bad to worse. I'm trying so hard to fix things but everything seems to be working against me. I've never gotten in trouble before because of my performance so I'm taking it really hard. It seems like I'm never going to be able to get my next sleep study done because of all these obstacles. And on top of this, my migraines are acting up big time cause of all the stress.

Monday, June 8, 2015

Another chapter

Last Thursday I had the ERCP procedure where the docs cleaned out some sludge from my bile duct and they made a small incision to help things flow better, but I had a bad pain reaction when I woke up. I ended up in the ER for several hours to manage the pain. They let me go home later that night.

Then Friday night, I had a bad fever, along with severe pain, chills, shaking, and nausea. Saturday morning, I was back in the ER and they admitted me to the hospital for a blood infection called Sepsis. I was in the hospital until Tuesday. They pumped me full of antibiotics and they did several more tests to try to find out where infection was coming from.

Now I'm back home with a big bottle of antibiotics. The docs are hoping that the pain will calm down when everything heals up. I'm still having a lot of the same symptoms with pain and nausea like I did before the procedure. My appetite is still off and I'm living on buttered noddles and toast.

Tomorrow, it will be two months since this whole thing started. I have no idea when I will be able to get my sleep study done, and I'm having major problems at work because I'm not meeting my goals. With the chronic daily migraine and severe sleep apnea, I'm already struggling with the exhaustion, loss of concentration, and memory problems. Now I have these other health problems on top of it.

Sunday, May 24, 2015

another chapter in the ongoing saga....

I had my endoscopic ultrasound and the docs found what they think is a partial blocked bile duct between my pancreas and my gall bladder, which might be causing all the problems. So I have to another procedure with sedation called an ERCP where they are going to try to open the bile duct, etc... The scary thing is that one of the complications is having another possible bout of pancreatitis after the procedure, but they said they will take steps to prevent it.

I'm really hoping that this next procedure gets me on the other side of this whole episode. Everything else seems to be on hold until I can get this cleared up. I still want to get my next sleep study done. I'm trying to do the one day at time type thing right now, cause I feel like I might lose my mind if I don't.