Tuesday, July 19, 2016

trying to hang in there

So my cognitive decline continues. I saw a new neuro. He ordered a DAT scan and a neuropsych evaluation which is in September. I can barely read or write. My short term memory is horrible. I don't feel like myself.

Tuesday, June 28, 2016

Find Peace

I'm really having a super hard time writing stuff and my drawing is suffering as well, so I've been taking nature pics and adding quotes

Monday, June 20, 2016

Trying to find the positive

Just trying to get my words and thoughts together to post something is awful. Everything just keeps getting worse.

Tuesday, May 31, 2016

Where is the light?

I'm having so many neurological problems along with my gastroparesis right now. I still have the tremor in my right hand along with body tremors which happen about three to four times a day now. I’m also having speech problems. I keep losing words right at the moment I try to say something. I look at something and I can't remember what it's called. I keep mispronouncing and misspelling words.

My handwriting has become horrible. I barely read what I've tried to write, and I'm having the worst time concentrating, trying to keep a thought in my head. Also, I'm finding that most food to tastes like garbage. I don't know if it's because my sense of smell is off or if it's because of the gastroparesis.

My mri was normal and my eeg was normal, so no seizures. I went back to my neurologist and he is sending me to a neurology movement disorder clinic, but they have a temporary freeze on new patient appointments.They will call me with an appointment as soon as they can. Meanwhile, I'm still having the migraines and the sleep apnea as well. I'm off work on disability until the end of June, but how am I supposed to get better when they can't figure out what this tremor stuff is.

Thank goodness for that dictating thing on my iPhone or I wouldn't be able to even write this!

Thursday, May 19, 2016

Trying to Stay Positive

I'm trying to hard to stay positive right now, but it's so hard. I've been off work on disability because of the gastroparesis pain and the tremors in my right hand. I can barely type. Also, I'm having full body tremor things. I'm waiting on my neurologist on my eeg test to see if they are actually seizures, but they are doing my head in with this disorientation after. Even trying to type this and spell is a huge chore. My migraines are just going nuts with all this!

Wednesday, April 13, 2016

I am a mess!

I actually got to see my neurologist yesterday. I've developed a tremor in my right hand, which the docs seem to think was brought on by an anti-depressant, so I got a quick referral to the neurologist. He said for now it's a tremor of unknown origin and I have to get a MRI. Also, I got to talk to him about my migraines. He is referring me to the headache pain clinic within the hospital, and he wants me to try Lyrica. I haven't had any luck with anti-consultants so far, so I'm not holding up much hope that this will work. But I figure it's worth a try.

Plus, my GI had mentioned the same drug for my gastroparesis pain. I had a CAT scan for my gastroparesis, and that got me another endoscopy appointment in a few weeks, cause he saw something he wants to check out with my pancreas. My GP pain is getting unmanageable and beyond awful. And I'm still losing weight. A lot of days I simply don't even want to eat.

I feel like I'm right back where I was at last year when this pancreas stuff started with all these tests and referrals, etc...Of course, my performance at work is slipping too, so I've got all that added stress as well.