Friday, November 20, 2015

Holiday Depression Monster

The holiday depression monster has been sneaking up on me, especially with my newly added health problems. I feel bad for my migraines right now cause they are being so neglected.

Thursday, October 29, 2015

New Gastroparesis Blog

I decided to start a new blog for my tummy troubles. I'm feeling that same sort of frustration with this new chronic condition that I felt when I started this migraine blog. Basically, I need somewhere to vent, learn and explore how this is impacting my life. So I'm going to post about my migraines here and I'm going to post about my tummy there...

Tuesday, October 20, 2015

Back to Start Again

I'm still at square one with the medication for the gastroparesis. I was supposed to take the Nortriptyline for two weeks and then call the doc to have him increase the dose, which I did. That's when one of his nurses figured out that there was a drug interaction between the Nortriptyline and something else I'm taking, so he had me stop taking the N. Now I'm waiting to hear what he wants to try next.

Meanwhile, I'm dealing with this epic exhaustion that I can't begin to get a handle on. I don't know if it's coming from the tummy stuff or the combination of migraine, sleep apena and the gp. The tummy pain is awful, especially as the day carries on. All my tricks for dealing with my migraines have gone out the window cause they conflict with the gp, so then my migraines feel worse cause I'm not distracting them.

Monday, October 5, 2015

This is so depressing....

I had my follow up appointment with my Gastro Doc. He said he feels that the pancreatitis may have called the gastroparesis, and he has seen this happen before in a few patients. My endoscopy came back normal as well as the biopsies. I do have GERD and Esophatitis. He wants me to take Prilosec for that.

For the gastroparesis, he is prescribing Nortriptyline and diet modification. I had tried Elavil before for my migraines, which gave me bad side effects, so he is starting me out on 10 mg for a couple weeks to see how I do. If this doesn't help, he is going to try Domperidone. That is the one that you have to order from another country.

The diet modification is basically a low fat/low residue type diet, which is going to be tricky cause I'm a vegetarian and I can't tolerate dairy right now. Plus, I'm still losing weight cause I can only take a few bites of food, and then I feel full.

My other problem is the exhaustion. I still haven't been able to use my CPAP cause of the abdominal pain. It's really hard to wear the mask when your stomach is hurting so bad and you're trying get to sleep. I can feel the years being ticked off my life with the double whammy of sleep apnea and gastroparesis.

Sunday, September 20, 2015

Scoping Things Out

I had my endoscopy last Tuesday. The procedure was three hours late, which didn't help my nerves at all, but the actual procedure went fine. The doctor didn't find any obstructions, and he took four biopsies. I should know the results on those in two to four weeks.

He mentioned some possible drugs for the gastroparesis. One is called Reglan, which has horrible side effects, and the other one has to be ordered from out of the country. He said he could write a script for that one. I have a follow up appointment with him in two weeks where we will discuss all this. He said he is still trying to determine where the delayed gastric emptying in coming from. He's not sure if the pancreas is still involved.

I told him that my symptoms are getting far worse. The pain and cramping is so painful and I can only take a few bits of food before I feel completely stuffed. I have never experience this level of exhaustion in my life, and I already have exhaustion from the sleep apnea. My team leader at work said I'm still on a critical level of warning, so my job could be gone any day now.

Friday, August 28, 2015

The End of August

This has been such a long month and so stressful. The results came back from the radioactive scrambled egg test and the solid food portion was abnormal. My doctor says he thinks I have gastroparesis, which means the stomach doesn't function normally. Basically it's paralysis of the muscles of the stomach. I heard this from his nurse over the phone with the results so there wasn't much information. I'm still waiting for the test in September to see if there is an obstruction causing this.

Meanwhile, my symptoms with the pain, cramping and not eating much are getting worse, but I can't take time off work to go see him again or I will lose my job. I really thought I was going to be terminated last week, but I got another stern warning. I don't think it's a question of "IF" I'm going to be a fired, but more of a question of "WHEN."

I'm starting to miss the days when I was just worried about my migraines. They are still going strong, especially now with my allergies. I haven't used my cpap machine in weeks cause of all the congestion. And my ADA claim was denied, but there wasn't enough evidence for an accommodation.

Wednesday, August 12, 2015

August Update

I'm still trying to hang in there, but I've been so depressed that I didn't want to post another "poor me" whine fest. I had the gastric emptying study where I had to eat radioactive eggs to see how the food progressed through my system. I'm still waiting for the results. And my next endoscopy isn't until the middle of September. All my symptoms are still the same with the pain and cramping in my abdomen and I'm continuing to lose weight.

Meanwhile, I'm on a final 30 day written warning at work and I'm pretty sure I will be terminated next week. I did exhaust my fmla time, so now I have to work even when I have a major migraine pain flair up. I've been trying to improve my performance at work, but I can't make enough of a difference because of all my health issues. Yesterday, I had an awful migraine, so I was making all sorts of mistakes. Talk about crash and burning!