Monday, June 20, 2016

Trying to find the positive



Just trying to get my words and thoughts together to post something is awful. Everything just keeps getting worse.

Tuesday, May 31, 2016

Where is the light?

I'm having so many neurological problems along with my gastroparesis right now. I still have the tremor in my right hand along with body tremors which happen about three to four times a day now. I’m also having speech problems. I keep losing words right at the moment I try to say something. I look at something and I can't remember what it's called. I keep mispronouncing and misspelling words.

My handwriting has become horrible. I barely read what I've tried to write, and I'm having the worst time concentrating, trying to keep a thought in my head. Also, I'm finding that most food to tastes like garbage. I don't know if it's because my sense of smell is off or if it's because of the gastroparesis.

My mri was normal and my eeg was normal, so no seizures. I went back to my neurologist and he is sending me to a neurology movement disorder clinic, but they have a temporary freeze on new patient appointments.They will call me with an appointment as soon as they can. Meanwhile, I'm still having the migraines and the sleep apnea as well. I'm off work on disability until the end of June, but how am I supposed to get better when they can't figure out what this tremor stuff is.

Thank goodness for that dictating thing on my iPhone or I wouldn't be able to even write this!

Thursday, May 19, 2016

Trying to Stay Positive



I'm trying to hard to stay positive right now, but it's so hard. I've been off work on disability because of the gastroparesis pain and the tremors in my right hand. I can barely type. Also, I'm having full body tremor things. I'm waiting on my neurologist on my eeg test to see if they are actually seizures, but they are doing my head in with this disorientation after. Even trying to type this and spell is a huge chore. My migraines are just going nuts with all this!

Wednesday, April 13, 2016

I am a mess!

I actually got to see my neurologist yesterday. I've developed a tremor in my right hand, which the docs seem to think was brought on by an anti-depressant, so I got a quick referral to the neurologist. He said for now it's a tremor of unknown origin and I have to get a MRI. Also, I got to talk to him about my migraines. He is referring me to the headache pain clinic within the hospital, and he wants me to try Lyrica. I haven't had any luck with anti-consultants so far, so I'm not holding up much hope that this will work. But I figure it's worth a try.

Plus, my GI had mentioned the same drug for my gastroparesis pain. I had a CAT scan for my gastroparesis, and that got me another endoscopy appointment in a few weeks, cause he saw something he wants to check out with my pancreas. My GP pain is getting unmanageable and beyond awful. And I'm still losing weight. A lot of days I simply don't even want to eat.

I feel like I'm right back where I was at last year when this pancreas stuff started with all these tests and referrals, etc...Of course, my performance at work is slipping too, so I've got all that added stress as well.

Tuesday, March 15, 2016

Trying to Love Yourself



I took this pic in an alley in Ann Arbor over the weekend. I'm really trying to keep loving myself, but now I'm having another health issue. I'm getting tremors in my right arm. I called my GI doc about it, but he says it's not related to my medications so I have to go see my primary care doc. I've figure out that it's a resting tremor, which means it starts up when my hand is at rest and it goes away when I move my hand. I'm really trying not to diagnose myself with something awful so I don't freak myself out.

Thursday, February 11, 2016

Choose Hope



I'm really trying to encourage myself to be hopeful right now, but it is so hard. My GP is just getting worse and none of the medications so far are helping. I'm just playing wheel of fortune with drugs with my GI doctors and the options to treat GP are so limited. My migraines just rage on without any help and I've given up trying to use my cpap mask cause the pain in my stomach is so distracting at bedtime.